Ride 4 Gabe, quest for a cure - ABC 33/40 - Birmingham News, Weather, Sports

Ride 4 Gabe, quest for a cure

Posted: Updated:

 A quest to help a Shelby County boy begins Monday morning.

 Cyclists will ride cross-country, to share "Gabe Griffin's" story.

Gabe suffers from a rare form of Muscular Dystrophy called Duchenne. His family wants approval for a drug to fight the disease.

A motorhome and suburban with Gabe's picture on it will head to Oregon. That's where two cyclists will begin riding 3300 miles back to Alabama.

Duchenne is the number one genetic killer of boys in the world. The long trip could mean a longer life for Gabe and others.

"Oregon, Idaho, Wyoming, Nebraska, South Dakota, Iowa, Illinois, Indiana, Kentucky, Tennessee and Alabama."

Ride 4 Gabe is about to turn some heads at least, that's the hope.

Michael Staley says, "If you look at what Gabe is going through and think about the journey he faces, then think about riding a bike 3300 miles is not a big deal."

"We're setting out to raise awareness about a disease a lot of people haven't heard of called Duchenne." Scott Griffin says his son Gabe was born with it. He isn't expected to live past 20.

"Every day that goes by, Gabe's getting weaker. He doesn't know he's dying."

"There's a drug out there that can help save these boys and we want to make that a loud and clear message of this trip."

Griffin says clinical trials have shown it minimizes the disease. "For about 18 months we've been pursuing the FDA and we've been going to DC a lot a lobby for the drug."

He also plans on advocating the 'Right to Try" law passed in Colorado, which gives patients with terminal diseases access to drugs not approved by the FDA.

Griffin and others hope this pursuit will get some wheels turning. "I can't put a band-aid on this or fix it, but what I can do is fight for him at all the levels I possibly can, which means Congress, Senate. FDA, Obama."


 Griffin says 100, 000 have people signed a white house petition to accelerate fda approval of the drug treating Duchenne.

 Other volunteers are helping drive and document the journey.

 Ride 4 Gabe hopes the Alabama Cycling Community will join them when they return to Alabama.

For more information, just click on www.ride4gabe.com

The team will depart from Highland Lakes at 7am Tuesday.

Ride 4 Gabe will end in Mobile in mid-August.

 

 



Most Popular
Stories
Videos
loading...
  • Latest StoriesMore>>

  • Clay leaders plan to pave broken roads after warning from Post Office

    Clay leaders plan to pave broken roads after warning from Post Office

    Wednesday, August 20 2014 6:07 PM EDT2014-08-20 22:07:21 GMT
    Drivers in Clay are hitting some bumps in the road, literally. The majority of roads haven't been paved in at least 14 years according to the city's manager. The United States Postal Service is now threatening to not deliver mail because of it.More >>
    Drivers in Clay are hitting some bumps in the road, literally. The majority of roads haven't been paved in at least 14 years according to the city's manager. The United States Postal Service is now threatening to not deliver mail because of it.More >>
  • FBI searching for suspect in robbery, murder at Montgomery package store

    FBI searching for suspect in robbery, murder at Montgomery package store

    Wednesday, August 20 2014 6:00 PM EDT2014-08-20 22:00:33 GMT
    The FBI's Central Alabama Safe Streets Task Force is offering up to a $5,000 reward for information leading to the identification, arrest, and conviction of the person pictured.More >>
    The FBI's Central Alabama Safe Streets Task Force is offering up to a $5,000 reward for information leading to the identification, arrest, and conviction of the person pictured.
    More >>
  • Birmingham Mayor confident in DNC pitch, admits hurdles

    Birmingham Mayor confident in DNC pitch, admits hurdles

    Wednesday, August 20 2014 4:44 PM EDT2014-08-20 20:44:55 GMT
    Birmingham Mayor William Bell is more confident than ever in the city's chances of landing the 2016 Democratic National Convention.In an interview with ABC 33/40 Wednesday, Bell said it's a matter of proving the city can handle the large-scale event. Some critics argue other cities vying for the convention have more viable transportation and venue options."We still have a lot of heavy competition in terms of Philadelphia and New York. We lack in some areas that is of interest to the DNC such ...More >>
    Birmingham Mayor William Bell is more confident than ever in the city's chances of landing the 2016 Democratic National Convention.In an interview with ABC 33/40 Wednesday, Bell said it's a matter of proving the city can handle the large-scale event. Some critics argue other cities vying for the convention have more viable transportation and venue options."We still have a lot of heavy competition in terms of Philadelphia and New York. We lack in some areas that is of interest to the DNC such ...More >>
  • Avondale Elementary school generating buzz

    Avondale Elementary school generating buzz

    Wednesday, August 20 2014 4:26 PM EDT2014-08-20 20:26:18 GMT
    Many parents are no longer trying to get their children out of Birmingham City Schools. In fact, more are looking to get them in.And schools, like Avondale Elementary, are seeing higher enrollment.These families aren't the only community members getting involved.Avondale is one of five schools that is part of the Woodlawn Innovation Network. This new initiative offers a hands on, personalized approach to teaching and learning. It gets more Birmingham business leaders invested and into the...More >>
    Many parents are no longer trying to get their children out of Birmingham City Schools. In fact, more are looking to get them in.And schools, like Avondale Elementary, are seeing higher enrollment.These families aren't the only community members getting involved.Avondale is one of five schools that is part of the Woodlawn Innovation Network. This new initiative offers a hands on, personalized approach to teaching and learning. It gets more Birmingham business leaders invested and into the...More >>
  • Alabama WR Amari Cooper anxious to 'break records' in 2014

    Alabama WR Amari Cooper anxious to 'break records' in 2014

    Wednesday, August 20 2014 2:12 PM EDT2014-08-20 18:12:38 GMT
    The second-ranked Crimson Tide star is one of the nation's top wide receivers and a highly regarded NFL prospect, but he's also coming off a season when nagging injuries, frequent double teams and inconsistency contributed to a rough start.More >>
    The second-ranked Crimson Tide star is one of the nation's top wide receivers and a highly regarded NFL prospect, but he's also coming off a season when nagging injuries, frequent double teams and inconsistency contributed to a rough start.
    More >>
  • WATCH: Nick Saban, Alabama football team complete Ice Bucket Challenge for ALS

    WATCH: Nick Saban, Alabama football team complete Ice Bucket Challenge for ALS

    Wednesday, August 20 2014 1:59 PM EDT2014-08-20 17:59:26 GMT
    You know Nick Saban would never back down from a challenge, especially one that's for such a worthy cause.More >>
    You know Nick Saban would never back down from a challenge, especially one that's for such a worthy cause.More >>
  • WHO: West Africa Ebola death toll rises to 1,350

    WHO: West Africa Ebola death toll rises to 1,350

    Wednesday, August 20 2014 1:52 PM EDT2014-08-20 17:52:45 GMT
    The World Health Organization says the death toll from the Ebola outbreak in West Africa is now at least 1,350 people.More >>
    The World Health Organization says the death toll from the Ebola outbreak in West Africa is now at least 1,350 people.More >>
  • Obama says world appalled by beheading of US journalist James Foley (video)

    Obama says world appalled by beheading of US journalist James Foley (video)

    Wednesday, August 20 2014 1:40 PM EDT2014-08-20 17:40:36 GMT
    Obama says world appalled by brutal murder of journalist James Foley; spoke with his family.More >>
    Obama says world appalled by brutal murder of journalist James Foley; spoke with his family.More >>