Matters of Faith Gabe's Story - ABC 33/40 - Birmingham News, Weather, Sports

Matters of Faith Gabe's Story

Matters of Faith Gabe's Story

Posted: Updated:
SHELBY COUNTY - AL -     Parents are fighting to save their son....
Gabe Griffin has duchene ... his muscles break down... but they don't have the protein to rebuild them.
   The family is racing against time to get a drug approved that could save him.
 
  Gabe and his twin sister  just turned 9 .... the Griffin family is celebrating with a game in the back yard.


 Gabe looks like a normal healthy little boy.... but he has been diagnosed with a rare condition.

Scott Griffin is Gabe's dad.
 He says, "He has a disease called duchene its a muscular disorder. Although he
runs and plays... his muscles are deteriorating on the inside. There's not a
treatment and not a cure. His prognosis: at 12 he is expected to be in a wheelchair. Then at 19 or 20 his
journey will be over."


But there is hope.... it's a drug called apperson.
It has no known side effects, but got denied approval.
 It's the only hope this family has to keep Gabe healthy.
So the griffins organized a petition to get the drug back on the table to get approved.


Scott says, "I am trying to save my son. We have been going to D.C. And in a letter writing campaign not only to get
this drug in the hands of Gabe but the other children that could benefit.
 15,000 other children in the U.S. Have duchene.
 We had to get a hundred thousand signatures in 30 days... for
Obama to have to officially respond."

  They got the needed signatures and are awaiting a response.
While in D.C. the Griffins tried to meet with many lawmakers... made a new friend in Congressman Bachus' office.


 Michael Staley/Congressman Bachus Chief of Staff.  "I'm standing in the doorway this little red headed kid comes up to me and says are
you Spencer Bachus? I said no but come on in.
 I instantly fell in love with the family, when you see a dad willing to
put everything on the line to save his son it touches your heart."

 Michael Staley is going to ride across the country to bring attention to  this condition... and raise money to fight it.

 Scott, "God puts people in your lives for a reason.
 right now i'm trying to save my son."

Michael says, "This is a time of my life I want to give back,  to take a message across
country is not a sacrifice compared to what Scott and Tracy do for Gabe.
 We are gonna ride June 28 we are gonna go from astoria oregon and
ride across the country..once we get past iowa...head south... end the ride in
mobile."
 
Scott, "As a parent you pray everyday you are not in this situation and you
pray everyday you are not. But we're here we can either hide our head in
stand or fight.
  One day I'm gonna have to
tell him that he's dying.
 I pray every night that day doesn't come. I do believe with  apperson
we have a chance."


 Here's how you can help.... they are asking for help in using an rv and camping equipment for the trek.
and the hope for  gabe team is looking for a volunteer who can help with marketing along the way.
 also you can donate money to help fight duchenne,  go to www.hopeforgabe.org
  • Central Alabama NewsMore>>

  • Employees File Lawsuit Against Huntsville Space and Rocket Center

    Employees File Lawsuit Against Huntsville Space and Rocket Center

    Tuesday, July 29 2014 7:33 AM EDT2014-07-29 11:33:03 GMT
     Three employees of the U.S. Space and Rocket Center in Huntsville have files a lawsuit, saying that the center forced them to work state holidays.More >>
     Three employees of the U.S. Space and Rocket Center in Huntsville have files a lawsuit, saying that the center forced them to work state holidays.
    More >>
  • Pike Road woman named new ASU Trustee

    Pike Road woman named new ASU Trustee

    Monday, July 28 2014 10:27 PM EDT2014-07-29 02:27:11 GMT
    Gov. Robert Bentley has appointed Pam Ware of Pike Road as a trustee of Alabama State University.A spokeswoman for the governor says Ware replaces Elton Dean of Montgomery, who resigned last week at the request of the governor.Ware is an Alabama State graduate who works as manager of intergovernmental affairs at the Business Council of Alabama.Also on Monday, the governor scheduled a special meeting for the Alabama State trustees on Aug. 8. A spokeswoman for the governor says topics to be dis...More >>
    Gov. Robert Bentley has appointed Pam Ware of Pike Road as a trustee of Alabama State University.A spokeswoman for the governor says Ware replaces Elton Dean of Montgomery, who resigned last week at the request of the governor.Ware is an Alabama State graduate who works as manager of intergovernmental affairs at the Business Council of Alabama.Also on Monday, the governor scheduled a special meeting for the Alabama State trustees on Aug. 8. A spokeswoman for the governor says topics to be dis...More >>
  • Alabama farmers honored at the White House

    Alabama farmers honored at the White House

    Monday, July 28 2014 5:52 PM EDT2014-07-28 21:52:40 GMT
    Two Alabama farmers are being honored at the White House. Bill Bridgeforth of Tanner and Lee Haynes of Cullman are among 15 people being recognized as "Champions of Change" in Washington on Tuesday. The the Agriculture Department honors people who are empowering and inspiring members of their local communities.Bridgeforth is a fourth-generation farmer in Limestone County. He's also a county chairman of the National Black Growers Association.Haynes is an egg farmer in Cullman County. After gra...More >>
    Two Alabama farmers are being honored at the White House. Bill Bridgeforth of Tanner and Lee Haynes of Cullman are among 15 people being recognized as "Champions of Change" in Washington on Tuesday. The the Agriculture Department honors people who are empowering and inspiring members of their local communities.Bridgeforth is a fourth-generation farmer in Limestone County. He's also a county chairman of the National Black Growers Association.Haynes is an egg farmer in Cullman County. After gra...More >>
Most Popular
Stories
Videos
loading...
  • Latest StoriesMore>>

  • Principal addresses several job openings at Minor High School

    Principal addresses several job openings at Minor High School

    Tuesday, July 29 2014 9:06 AM EDT2014-07-29 13:06:21 GMT
    Students in Jefferson County return to school next week. Parents with kids at Minor High School wonder who will teach them and which classes they'll take. One emailed ABC 33/40 asking us to help get answers.The parent told ABC 33/40 through email, there are 20 vacancies on the staff and no counselors on the payroll Minor High. Principal Dr. JuntaAnnn acknowledged she is in a hiring blitz, but there's more to the story."Minor High School is a well-kept secret," said Dr.Annn.Dr.Annn is aware on...More >>
    Students in Jefferson County return to school next week. Parents with kids at Minor High School wonder who will teach them and which classes they'll take. One emailed ABC 33/40 asking us to help get answers.The parent told ABC 33/40 through email, there are 20 vacancies on the staff and no counselors on the payroll Minor High. Principal Dr. JuntaAnnn acknowledged she is in a hiring blitz, but there's more to the story."Minor High School is a well-kept secret," said Dr.Annn.Dr.Annn is aware on...More >>
  • Homewood City Council denies hotel an extension to continue operating

    Homewood City Council denies hotel an extension to continue operating

    Tuesday, July 29 2014 8:32 AM EDT2014-07-29 12:32:34 GMT
    A Homewood hotel plagued by problems must close by the end of the week. City leaders considered an extension for America's Best Value Inn and Suites, but denied the request.More >>
    A Homewood hotel plagued by problems must close by the end of the week. City leaders considered an extension for America's Best Value Inn and Suites, but denied the request.More >>
  • Jefferson County Schools meal prices for 2014-15 school year

    Jefferson County Schools meal prices for 2014-15 school year

    Tuesday, July 29 2014 8:20 AM EDT2014-07-29 12:20:54 GMT
    A look at breakfast and lunch prices for Jefferson County Schools.More >>
    A look at breakfast and lunch prices for Jefferson County Schools.More >>
  • Alabama's Tax-Free Weekend Starts Friday

    Alabama's Tax-Free Weekend Starts Friday

    Tuesday, July 29 2014 8:17 AM EDT2014-07-29 12:17:40 GMT
    Alabama's Tax-Free Weekend will kick off this Friday and end on Sunday. During that time, shoppers can purchase school supplies, clothing and computers without paying the state's sales tax on it.More >>
    Alabama's Tax-Free Weekend will kick off this Friday and end on Sunday. During that time, shoppers can purchase school supplies, clothing and computers without paying the state's sales tax on it.More >>
  • Two shot at Tuscaloosa apartment complex

    Two shot at Tuscaloosa apartment complex

    Two shot at Tuscaloosa apartment complex

    Tuesday, July 29 2014 7:35 AM EDT2014-07-29 11:35:46 GMT
    A female juvenile and an adult male were shot around 7pm at Forrester Gardens Apartments in 1300 James Harrison Pkwy.More >>
    A female juvenile and an adult male were shot around 7pm at Forrester Gardens Apartments in 1300 James Harrison Pkwy.More >>
  • Employees File Lawsuit Against Huntsville Space and Rocket Center

    Employees File Lawsuit Against Huntsville Space and Rocket Center

    Tuesday, July 29 2014 7:33 AM EDT2014-07-29 11:33:03 GMT
     Three employees of the U.S. Space and Rocket Center in Huntsville have files a lawsuit, saying that the center forced them to work state holidays.More >>
     Three employees of the U.S. Space and Rocket Center in Huntsville have files a lawsuit, saying that the center forced them to work state holidays.
    More >>
  • Abuse suspect dead; 2 marshals, NY policeman hurt

    Abuse suspect dead; 2 marshals, NY policeman hurt

    Tuesday, July 29 2014 3:35 AM EDT2014-07-29 07:35:44 GMT
    Authorities say a sex-assault suspect got in a shootout with law enforcement in New York City that wounded the suspect, two federal marshals and a police officer.More >>
    A California man who skipped town after being accused of molesting a boy was killed and three law enforcement officers trying to arrest him were wounded in a daytime shootout inside a small smoke shop in one of New...More >>
  • Pike Road woman named new ASU Trustee

    Pike Road woman named new ASU Trustee

    Monday, July 28 2014 10:27 PM EDT2014-07-29 02:27:11 GMT
    Gov. Robert Bentley has appointed Pam Ware of Pike Road as a trustee of Alabama State University.A spokeswoman for the governor says Ware replaces Elton Dean of Montgomery, who resigned last week at the request of the governor.Ware is an Alabama State graduate who works as manager of intergovernmental affairs at the Business Council of Alabama.Also on Monday, the governor scheduled a special meeting for the Alabama State trustees on Aug. 8. A spokeswoman for the governor says topics to be dis...More >>
    Gov. Robert Bentley has appointed Pam Ware of Pike Road as a trustee of Alabama State University.A spokeswoman for the governor says Ware replaces Elton Dean of Montgomery, who resigned last week at the request of the governor.Ware is an Alabama State graduate who works as manager of intergovernmental affairs at the Business Council of Alabama.Also on Monday, the governor scheduled a special meeting for the Alabama State trustees on Aug. 8. A spokeswoman for the governor says topics to be dis...More >>