Parents answer lawmakers' questions about Carly's Law - ABC 33/40 - Birmingham News, Weather, Sports

Parents answer lawmakers' questions about Carly's Law

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MONTGOMERY - AL -

Alabama lawmakers got to meet Daniel, Leni, Avery and Carly. All four children suffer from daily seizures. Now, their parents best hope is legalizing oil from the marijuana plant.

Carly's Law would legalize it for medicinal purposes.

As the parents explained to lawmakers- while there are no guarantees, there is hope.

"Just stopping by and saying, 'hello' means a lot," said Dustin Chandler, Carly's father.

Chandler introduced numerous lawmakers to his daughter and Carly's Law.

"Were these children premature?," asked one lawmaker.

"Nope. Carly was full term, normal typical pregnancy," he explained.

Carly started having seizures at eight weeks- Leni at 35 days, Avery at two years and Daniel at five years.

Alicia Church remembers her seven year old son's first.

"We found him in his crib. He was already blue. He was lifeless," said Church, Daniel's mother.

Daniel's story is like so many of the others. He was diagnosed with a disorder involving seizures. Instead of helping, medications made basic movement, like walking, more difficult. Church says he still has up to ten seizures a day, some lasting an hour.

"I still can't close my eyes because I'm afraid if I close my eyes, I may miss that seizure that takes my baby's life," she said.

As the parents explained to lawmakers, the families all want to try oil from the marijuana plant. Studies show it helps ease seizures without a high. Carly's Law would legalize it giving Chandler a chance to hear his daughter say, "daddy."

"Just one word would be breath taking. That's what we pray for every night," said Chandler.

It would be a chance for Leni's mom to feel her daughter's embrace... and for the world to see Avery's intelligence.

"Today, it's my child. Tomorrow, it could be your child, your grandchild or someone you love," said Church.  

The bill will go to the Senate floor Thursday. Right now, lawmakers are not hearing any opposition to it.

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